Observe

Things

Things I can no longer do

Things you wont allow me to

Things I know I’ve done before

Things of which I’m now, not sure

 

Places I have lived and moved

Places bringing sweet soul-soothe

Places unfamiliar, new

Places strange I go with you

 

Names and faces everywhere

Names that bring a memory fair

Names which used to fit in time

Names of those who once were mine

 

My soul is floating fettered to

My anchor, firm, which cannot move

My view when lifted by this storm

My mind cannot define its form

 

Things were planned before my time

Places set in boundaries mine

Names and faces I have loved

My soul will fly to home above

 

18/4/2019

Quotes and Questions When Raising/Teaching Students With a Vision Impairment

A couple of quotes that have stood out for me, over the years I have been raising my children who are bright, loving, independent, unique and blind. Also some questions to be continually asking ourselves.

A number of Early Childhood Educators working with children who have a vision impairment used to tell me they did a lot of “hand-sitting” (as with teenagers one does a lot of “tongue-biting”).

Hand over hand manipulation, and too much information without experiencing, fosters an environment of little or no learning; the information or experience is not assimilated into the life of the learner.

A couple of teachers for students with a vision impairment have said that a good integration aide will “do themselves out of a job”.

The object is not to integrate the aide/assistant into the life of the student, but to have the student integrated into their own community of peers; thereby no longer having any need to be present, the student having become independent, and interdependent with their own group of peers.

A past presenter at the South Pacific Educators In Vision Impairment (SPEVI) said that the two skills he used every day of his life were orientation and mobility, and social skills. These were the two neglected for his entire schooling!

All the information in the world, and even access to it, will mean nothing if I cannot move about in, and interact with the world…my world. If I cannot belong, I will have no purpose or hope.

Some questions to leave in a personally prominent, but nevertheless private, place to foster a regular consideration of one’s motives and interactions.

Am I interacting with (name) in ways that make me an indispensible attachment to him/her?

…or…

 Am I interacting with (name) in ways that make my constant presence redundant?

 

 Are my interactions with (name) moving her/him toward independence, and interdependence within his/her peer group?

 

 Who can and will I talk with about resources, ideas that have worked already, suggestions and my own accountability in these things?

I would suggest that the student/child be named (whether this is for school or home) as one is then considering the particular person one is interacting with.

10/8/2015

All Kids…and mums

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All kids…and Mums

All kids are cute            (photo of a kid goat laying on the ground, looking up)

All kids are curious      (photo of a kid goat looking at the photographer from a distance)

All kids are hungry       (photo of kid goat drinking from its mother)

All kids put things in their mouth          (photo of kid goat licking dry, standing grass)

All kids are thinkers     (photo of kid goat laying on the ground, looking downward)

All kids need a rest      (photo of kid goat laying on the ground, head turned)

All mums are busy doing what they do  (photo of mother goat feeding while walking)

 

The Family’s Experience – For the Educator and Professional

Paper presented at SPEVI 2015

Gina Schmidt

 

 

Smidkids

 

Reading of  “The Seed”

 

Today I have two observations I’d like to highlight.

Perhaps more by way of reminder than anything else, or maybe things you hadn’t considered yet.

 

Both observations I’d like to share relate to our tendency to forget, or at least relegate to the back blocks of our mind the understanding we may already have of our diversity, individuality and uniqueness – both personally, as families, cultures, and communities.

 

One of the most precious, and most threatening aspects of the family’s experience can be the medical and educational professionals’ involvement in our lives.

Sometimes the diagnosis you give, or the therapy you prescribe, or the new way of modeling and teaching you offer is the greatest relief, or hope, or validation for us.

Other times, these things cast us off into grief, or despair, guilt and/or isolation. Hopefully our journey involves some experience of all of these things, which would be considered ‘normal’.

From now on, you are part of our lives and our families. We may come to your office, but often you enter our homes. You observe us as we interact, play, eat, walk, read, cook…I could go on. Because our interactions are connected with many intimacies, as well as general functions of life, we may become close.

Alternatively, we may feel you’re more a part of our family than you do. Or you may feel more a part of our family than we feel you are.

We need to help each other understand what the nature of our relationship needs to be.

We need you to remember that we are a family, as you have your own family. Sometimes we need you to remind us that you contribute to our family, but we are unique and will determine our own family’s path.

 

 

I have experienced both. A very close and personal relationship with professionals built over time and three children. Also the intrusion of some; presuming positions and responsibilities within our family which were not offered, nor welcome, nor helpful.

The latter can be confusing for our children and blur the lines between roles and to whom our children are accountable. The former can be a beautiful collaboration of security, fostering growth and confidence in families – also a tangible illustration of the popular African proverb, “It takes a village to raise a child.”

 

 

My second observation is something we usually associate with those outside of the disability or, specifically this week, the vision impairment community.

 

We all hold to particular biases or preferences. Some biases are unhealthy because they are hurtful and damaging to someone else or ourselves. They may stem from false assumptions as opposed to being informed. Others though, are differences because each of us is unique, and each of our families, cultures and communities are unique.

There are choices we can make in relation to developing our young people or in maintaining the life choice of an adult with a vision impairment, and they are just that – choices.

Choices about the medical procedures we will, or will not embrace.

Choices about learning grade 1 or 2 Braille first off.

Choices about handling reactions to sensory stimulation, or lack thereof.

…toilet training, private or public schools, which piece or brand of technology best suits, city or country…

The list is endless!

I’ve learned that you all have your preferences, as do I. As does each individual, family and professional here.

Helping us to be informed but not overloaded would be the greatest gift of service you could offer us. Perhaps let us know the options, maybe another we can ask. Then help us follow up on the thing that interests us most. You never know, we may end up with the same preferences as you.

 

I’ve noticed that smaller communities are often a reflection of the broader community or culture, but the smaller may influence and therefore be reflected in the broader instead.

Looking forward to our little community being a positive influence in the broader community at large.

 

Let me finish by reading the end of the story, “The Seed,” to you again.

 

…As each one stepped back, and observed the tender plant, they were able to recognize what its needs might be. In turn they also enquired each of the other, to learn from observations they may not have recognized, or had prior knowledge of, to have even been considered.

Most importantly…

…as a team in constant communication , those employed for service to the growth of the new plant – in fact to service of the plant itself – began to listen for, and hear what the little plant was telling them. They heard and could see when the plant needed moisture, or sunlight, or protection, or space; because they were attending to the needs of the seed, instead of what they wanted to give or to do.

 

The little plant grew tall, and strong, and was borne of new seed, so that more plants could grow, providing clean air, and beauty to enjoy.

 

The workers and the sower lived with much joy, and with a profound, and unfathomable sense of accomplishment, as they witnessed the growth, and maturity, and provision, and beauty of the little seed, which became great.

 

 

SPEVI 2015 Time Out

Process, progress, organise

Sift and strain and scrutinize

Think, reflect and ruminate

Pre-occupy and inundate

 

Withdraw, compose, concentrate

Stillness, quiet, separate

Settle, soothe, lull and quell

Listen, hear, perceive as well

 

Befit, apply, appropriate

Attend and differentiate

Select, determine, designate

Prefer, elect and allocate

 

Undertake!

 

SPEVI

14/1/2015

International Day Of People With A Disability

Please

Please don’t make uninformed assumptions about my needs or requirements.

My peers and I will learn prejudice from good-intentioned ignorance.

 

Please don’t demand my independence without teaching it.

My peers and I will learn dis-ability.

 

Please don’t demand I ask for or receive help at your demand.

My peers and I will learn that I’ve no right to my own life and choices.

 

Please don’t decide my contribution based on your time constraints, energy level, prejudices, fears, and assumptions.

My peers and I will learn my only right is to live by another’s leave.

 

Please don’t decide what provision you can offer me after the funding’s been spent on everyone else’s needs first.

My peers and I will learn that my needs are wants, and not necessity.

 

Please don’t decide to ‘do for me’ what would make you feel good, important, needed, helpful.

My peers and I will learn that how you make me feel is irrelevant.

 


 

Please ask me what my needs or requirements are, or someone who has already found out what my needs are.

You can then meet the ones you are equipped and/or employed to.

 

Please ask me what independence means to me, or someone who has already found out what independence could mean and how it can be achieved for me.

You can then make informed choices about teaching it.

 

Please ask if I want/need help, and what help that might be.

You can then ‘help’ instead of hinder me.

 

Please ask me what contribution I would like to make.

You and I together can then negotiate and problem-solve our mutual contributions.

 

Please ask yourself and/or us all how our funds will best meet the needs of the group, school, community, family, country…

You and I will then each be acknowledging and meeting each other’s needs.

 

Please ask me how I feel.

You may develop:

empathy more so than sympathy

compassion more so than frustration

growth more so than ignorance

community more so than isolation

 

3/12/2014

Tidal

Rise and fall

Light and dark

Ebb and flow subsiding

Ripple, rumble

Dip and swell

Constant wax and waning

 

Ever moving

In and Out

Contained within a border

Unnatural force

Imposed upon

Disrupting created order

 

Tempests pass

Reducing swell

Repelling inundation

Return to scene

At one-time viewed

Revising demarcation

 

19/11/2014

The Seed

A seed was planted in good soil, unseen by anyone, in a personal act of love by one who desired to watch it grow and flourish and become what it was designed and planted to be.

The seed began to shoot and sprout up through the soil that had been prepared by the sower.

The sower then employed a variety of people to feed and nurture and protect and make space for the seed. The seed, once dead, now alive with fresh green growth, full of vibrancy and enthusiasm to become and produce all it was designed and destined to be.

 

The bank manager knew that growth comes from financial investment. So he surrounded and covered the small green shoots with money. But the sun could not break through to give the shoots the vital nourishment they required to continue to grow.

The librarian knew that growth comes from reading and gaining new information. She loved books of good quality so she surrounded and covered the small green shoots and the money with fine leather-bound books full of knowledge. But the rain could not penetrate the beautiful leather to moisten the good soil and nourish the seed with its roots beneath the surface, which was necessary for its growth.

The vermin controller knew that growth comes when protected from predators. So he covered the small green shoots and the money and the books with wire and a baited wooden trap to keep at bay and catch any that would come to devour the shoots or dig up the seed before it could grow to maturity. But the shoots were smothered and had no space to feed and grow.

The agronomist knew that growth comes with the absence of weeds. So she sprayed over the small green shoots and the money and the books and the wire and wooden traps. But the good soil became poisoned and made the roots and shoots sick.

 

And beneath all the good intentions, the new plant began to wither.

 

The sower was watching the seed he planted and those he employed to feed and nurture and protect and make space for the seed to grow…

…and his heart was breaking.

The sower had prepared the soil, the space, and the nourishment for the seed to grow to maturity as it was designed to, but chose to share the joy and fulfillment of contributing to its growth with others.

 

The sower called together the bank manager, the librarian, the vermin controller and the agronomist to discuss the withering of the plant.

To the bank manager, the sower explained the need for sunlight to reach the shoots to nourish them. Though he meant well, the new plant was malnourished.

To the librarian, the sower explained that the beautiful books prevented the rain from moistening the soil. Though she meant well, the new plant was dying of thirst.

To the vermin controller, the sower explained that the protective measures were smothering the plant. Though he meant well, the new plant was suffocating.

To the agronomist, the sower explained that poisoning the weeds in turn poisoned the soil in which the seed was planted. Though she meant well, the new plant was sick with poison.

 

“I chose each of you for the good you might contribute to the growth of this seed I have planted. But you have each been working independently instead of interdependently. The librarian can contribute to an informed approach to vermin and weed control, plant and soil nourishment. The bank manager can contribute to financial provision and management for this education and the necessary resources. The vermin controller and agronomist can use their new education and resources to promote the plant’s growth instead of its demise.”

 

As each one stepped back and observed the tender plant, they were able to recognize what its needs might be. In turn they also enquired each of the other to learn from observations they may not have recognized, or had prior knowledge of to have even been considered.

Most importantly…

…as a team in constant communication , those employed for service to the growth of the new plant – in fact to service of the plant itself – began to listen for and hear what the little plant was telling them. They heard and could see when the plant needed moisture, or sunlight or protection or space; because they were attending to the needs of the seed instead of what they wanted to give or to do.

 

The little plant grew tall and strong and was borne of new seed so that more plants could grow, providing clean air and beauty to enjoy.

 

The workers and the sower lived with much joy and with a profound and unfathomable sense of accomplishment as they witnessed the growth, and maturity, and provision, and beauty of the little seed, which became great.

 

Gina Schmidt 26/6/2014