Expectation

Quotes and Questions When Raising/Teaching Students With a Visual Impairment

A couple of quotes that have stood out for me, over the years I have been raising my children who are bright, loving, independent, unique and blind. Also some questions to be continually asking ourselves.

A number of Early Childhood Educators working with children with visual impairments used to tell me they did a lot of “hand-sitting” (as with teenagers one does a lot of “tongue-biting”).

Hand over hand manipulation, and too much information without experiencing, fosters an environment of little or no learning; the information or experience is not assimilated into the life of the learner.

A couple of teachers for students with visual impairments have said that a good integration aide will “do themselves out of a job”.

The object is not to integrate the aide/assistant into the life of the student, but to have the student integrated into their own community of peers; thereby no longer having any need to be present, the student having become independent, and interdependent with their own group of peers.

A past presenter at the South Pacific Educators In Vision Impairment (SPEVI) said that the two skills he used every day of his life were orientation and mobility, and social skills. These were the two neglected for his entire schooling!

All the information in the world, and even access to it, will mean nothing if I cannot move about in, and interact with the world…my world. If I cannot belong, I will have no purpose or hope.

Some questions to leave in a personally prominent, but nevertheless private, place to foster a regular consideration of one’s motives and interactions.

Am I interacting with (name) in ways that make me an indispensible attachment to him/her?

…or…

 Am I interacting with (name) in ways that make my constant presence redundant?

 

 Are my interactions with (name) moving her/him toward independence, and interdependence within his/her peer group?

 

 Who can and will I talk with about resources, ideas that have worked already, suggestions and my own accountability in these things?

I would suggest that the student/child be named (whether this is for school or home) as one is then considering the particular person one is interacting with.

10/8/2015

Cane Verses Guide Dog

By Christine Casey…Teacher, musician, friend

Since I received Lainie, a number of people have asked me how using a guide dog is better than using a cane. I’m still not sure that I can explain it well, but here is a comparison of how I felt the other week, walking along Swanston street with Lainie compared to how I have felt doing it with a cane earlier in the year.
With a cane:
I must listen carefully as concentrating to hear voices, footsteps, traffic and the echoes off buildings, posts and pedestrians helps me to keep myself orientated. Despite my careful listening resulting in a greatly reduced number of collisions with objects and people, my cane is constantly becoming entangled in signs, seats and legs. Every thirty seconds I seem to be muttering an apology. My speed varies considerably as I focus my concentration on dodging things and people and listening for clear paths. The appearance of a street sweeper or similar constant and loud noise causes frustration as it reduces my ability to hear potential obstacles. I secretly wish the Melbourne City Council would ban all buskers as they attract crowds which block my way and require careful negotiation. While I realise that my fellow humans are probably not paying me any attention, I feel incredibly conspicuous and somewhat awkward. By the time I make it to my destination, I’m longing for a rest and some quiet.
With a guide dog:
As the dog picks a path through the crowds, I am able to relax and appreciate the sounds of the city. I hear the tram bells, and notice music drifting out from doorways and I catch snippets of conversation from passing people. A wide variety of scents waft on the air. There is a gentle sun, and a slight breeze. I feel the dog’s movements through the harness handle and follow where she guides, only paying enough attention to ensure that she continues in an overall straight direction and to detect if she should become distracted or uncertain and require encouragement or instruction. My steps flow and there is little need to vary speed, except for especially crowded patches. The music of the buskers adds something special to the atmosphere and I feel a great fondness for them and this city which I now call home. The free-flowing nature of the journey makes me feel equal to my fellow pedestrians and, while I do overhear the occasional comment on the clever dog, I feel as though I blend into the crowd. When I reach my destination, I am somehow both energised and relaxed: ready for the next task of the day.

International Day Of People With A Disability

Please

Please don’t make uninformed assumptions about my needs or requirements.

My peers and I will learn prejudice from good-intentioned ignorance.

 

Please don’t demand my independence without teaching it.

My peers and I will learn dis-ability.

 

Please don’t demand I ask for or receive help at your demand.

My peers and I will learn that I’ve no right to my own life and choices.

 

Please don’t decide my contribution based on your time constraints, energy level, prejudices, fears, and assumptions.

My peers and I will learn my only right is to live by another’s leave.

 

Please don’t decide what provision you can offer me after the funding’s been spent on everyone else’s needs first.

My peers and I will learn that my needs are wants, and not necessity.

 

Please don’t decide to ‘do for me’ what would make you feel good, important, needed, helpful.

My peers and I will learn that how you make me feel is irrelevant.

 


 

Please ask me what my needs or requirements are, or someone who has already found out what my needs are.

You can then meet the ones you are equipped and/or employed to.

 

Please ask me what independence means to me, or someone who has already found out what independence could mean and how it can be achieved for me.

You can then make informed choices about teaching it.

 

Please ask if I want/need help, and what help that might be.

You can then ‘help’ instead of hinder me.

 

Please ask me what contribution I would like to make.

You and I together can then negotiate and problem-solve our mutual contributions.

 

Please ask yourself and/or us all how our funds will best meet the needs of the group, school, community, family, country…

You and I will then each be acknowledging and meeting each other’s needs.

 

Please ask me how I feel.

You may develop:

empathy more so than sympathy

compassion more so than frustration

growth more so than ignorance

community more so than isolation

 

3/12/2014

The Opportunity of Adversity – Aimee Mullins

Aimee Mullins speaking at TED.

Aimee says it all, need I say more?

“Adversity isn’t an obstacle that we need to get around in order to resume living our life. It’s part of of our life.”

“Our responsibility is not simply shielding those we care for from adversity, but preparing them too meet it well.”

“There’s an important difference, and distinction, between the objective medical fact of my being and amputee, and the subjective societal opinion of whether or not I’m disabled.”

“We have to be careful that we don’t put the first brick in a wall that will actually disable somebody.”

“By not treating the wholeness of a person, by not acknowledging their potency, we are creating another ill on top of whatever natural struggle they might have. We are effectively grading someone’s worth to our community. So, we need to see through the pathology and into the range of human capability.”

“Adversity is just change that we haven’t adapted ourselves to yet.”

“No prognosis can account for how powerful (could be) the determinant of the quality of someone’s life.”

…And, as others have said…

“I think that the only true disability, is a crushed spirit.”

 

Sibling Issues

So, all of my three children are blind. Are there sibling issues? Yes, but not the kind that families experiencing disabilities usually have.

Let me explain.

Number two and number three were reminiscing about each time someone’s fingers or feet were jammed in a car door. I added the time I jammed number one’s hand in the hatch door of a new vehicle. I have heard them ask each other to look at something (when they were quite young), expecting the other to see it as a sighted adult in their world would – without hands.

Our issues involved teaching them that, though they could request sighted assistance from their parents, they could not expect the same from their siblings. It may have been insensitive for a sighted person not to inform them that they were closing a car door, but it was insensitive of each of them not to warn each other of the same.

So much is learned by observation, and we are inclined to presume things will be learned automatically.

There are some who don’t get the opportunity to observe much to learn from (or what has been observed is unhealthy or inappropriate).

Teaching, though, doesn’t have to be a complex lesson. It may come in the form of conversation, a shared task, verbal guidance through an experience. Some need this into adulthood because they missed out on it while maturing, others may always need some form of guided instruction, even if just verbal or hands-on information. Not because they’re unable or unwilling to learn, but because the way the world, or me, or you, or we teach and model doesn’t fit with how the other is geared to learn.

Of course, as my children have grown to be young adults (with a much broader knowledge base than as little ones), it’s difficult to ‘switch off’ the teaching talk. Much to their chagrin and/or frustration. Sorry kids!

Guest Post – Child Number 3

*prepare for a random rant that probably goes all over the place and makes hardly any sense*

So in English we are currently studying a unit on protest songs and poems. The other day as we were analysing a song by Archie Roach about the stolen generation, our teacher was explaining the meaning of the word ‘prejudice’. She said it is when a person has misconceptions about another person because they are from another country, and that was all.

I understand that we didn’t have time to go into a lot of detail, and maybe she does think it can be for other things as well as a person’s nationality, but I personally thought that was a bit too narrow. The definition in the Oxford Dictionary says: “A preconceived opinion that is not based on reason or actual experience. Unjust behaviour formed from such a basis”. If someone has a prejudice it could be because someone has a disability, or because they have a different religious belief to another person, or perhaps even because they were educated differently to somebody else or absolutely anything. She made it sound like a synonym for racism which I don’t believe is quite right. I think the other problem when someone has a prejudice is they don’t tend to realise they have one.

I guess this got to me a little because of past personal experiences where people have made assumptions and tried to help/teach in a way that was actually quite unhelpful or inappropriate. Please realise I’m not asking for sympathy and I understand I’ll get this kind of thing practically all my life, but if people presume they know what they’re doing all the time or aren’t happy to change their ways then how is that helping the future generation of adults (as in my age level and below) to be socially acceptable and treat everyone equally?

There. I’m done now! If you have any thoughts on the topic and feel like commenting please don’t hesitate as I’d be interested to hear what others have to say. Also note that I’m not trying to have ago at the teacher mentioned above.

Very mature response from one’s child. Very proud mother. ‘Nuff said!